CHILDHOOD CANCERS-NIH CANDLELIGHTERS CANCER FNDN NAT'L CHILDREN'S LEUKEMIA FNDN
KIDS WITH CANCER CANCERSOURCE-KIDS LEUKEMIA & LYMPHOMA SOCIETY
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WHY ARE WE ASKING FOR HELP?

Here are some general reasons:

The course of treatment of Acute Leukemia for a female child under the age of 10 is two and a half years. Estimated costs average One Million Dollars.

The hospital costs alone are astronomical because of the numerous hospital stays with this disease. Anytime a fever goes up too high, any time ANC counts go too low, any infection, any crucial side effect of chemo, any unusual symptoms--all these require hospital stays. And that is in addition to the normal visits to the oncologist, which are once or twice a week during first six to eight months. In Mallory's case, the nearest place for her treatment is Kosair Children's Hospital in Louisville, a two-hour drive.

Pharmacy costs are almost as bad as hospital, because there are so many various chemotherapy drugs that she has to take. Some are injected into her port, some are injected into her spine, some into her legs and others are taken by mouth. The chemo protocol is brutal.

Travel expenses add up quickly. Gas expenses alone are a problem, but since the chemo sessions take several hours, clinic appointments are early morning, and usually this requires an overnight stay in Louisville the night before. There is a Ronald McDonald House there, but children with little or no immune system cannot risk staying there.

Reduction in family income is yet another issue. One parent must stay home. One parent must present for all treatments, and obviously a child this sick needs a parent.

Why do Mallory and her family need help?

Here are some specifics:

Yes, they do have insurance, but it is severely deficient for what they need.

They initially were on Robin's insurance program, which had been better. However. Robin had just changed jobs a few months before Mallory's diagnosis for a higher salary and better insurance to cover the huge medical bills they had begun to face with Mallory's little sister Samantha.

Samantha had developed asthma and severe allergies. As a stopgap, they had reverted to Stumpy's (Mallory's Dad) insurance coverage until the waiting period was over. She never got the new insurance for the children, though, as Mallory was diagnosed before the waiting period was over. Now, they will never be able to get better insurance, since both children have a pre-existing condition that will not be covered. So they are left with lots of hospital, physician, and pharmacy bills. In February 2005, Mallory spent 18 days at Kosair, unable to eat or drink, forcing her body into a state of anorexia and her mind into a state of depression. A feeding tube had to be placed into her intestines to "teach" them to work again, and they finally let them go home with the feeding tube. There have been numerous other hospital stays with low platelet or ANC counts, fevers, viruses, and drug side effects.

Robin had to take an extended leave of absence, without pay, to take care of Mallory. Her new employer has been extremely generous in trying to hold her position for her until the day comes that she can return, but no one knows how long that will be. She has taken odd jobs, such as cleaning neighbor's houses when Mallory is having a good day, but with the unpredictability of this disease, she cannot commit to anything on a regular basis. In the process of diagnosing leukemia they also found an unrelated condition, Mallory has a "tethered cord," and once she is able to go three full months without spinal taps or spinal injections she will need to have surgery for this as well.

Stumpy too has worked long hours and taken on odd extra jobs. His employer has been very supportive as well, giving him the time off her needs when Mallory's in the hospital for extended periods and misses her Dad.

They are living the nightmare that every parent fears. They celebrate the good days and try to cope with the bad ones. Life with cancer is hard enough without having the additional worry of whether you can pay the house payment or utility bill.

THIS FAMILY NEEDS HELP. Please consider buying a bracelet or some note cards, or making a straight donation, which you can do HERE.
 

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