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WHY ARE WE ASKING FOR HELP? Here are some general reasons: The course of treatment of Acute Leukemia for a female child under the age of 10 is two and a half years. Estimated costs average One Million Dollars. The hospital costs alone are astronomical because of the numerous hospital stays with this disease. Anytime a fever goes up too high, any time ANC counts go too low, any infection, any crucial side effect of chemo, any unusual symptoms--all these require hospital stays. And that is in addition to the normal visits to the oncologist, which are once or twice a week during first six to eight months. In Mallory's case, the nearest place for her treatment is Kosair Children's Hospital in Louisville, a two-hour drive. Pharmacy costs are almost as bad as hospital, because there are so many various chemotherapy drugs that she has to take. Some are injected into her port, some are injected into her spine, some into her legs and others are taken by mouth. The chemo protocol is brutal. Travel expenses add up quickly. Gas expenses alone are a problem, but since the chemo sessions take several hours, clinic appointments are early morning, and usually this requires an overnight stay in Louisville the night before. There is a Ronald McDonald House there, but children with little or no immune system cannot risk staying there. Reduction in family income is yet another issue. One parent must stay home. One parent must present for all treatments, and obviously a child this sick needs a parent. Why do Mallory and her family need help? Here are some specifics: Yes, they do have insurance, but it is severely deficient for what they need. They initially were on Robin's insurance program, which had been better. However. Robin had just changed jobs a few months before Mallory's diagnosis for a higher salary and better insurance to cover the huge medical bills they had begun to face with Mallory's little sister Samantha. Samantha had developed asthma and severe
allergies. As a stopgap, they had reverted to Stumpy's (Mallory's
Dad) insurance coverage until the waiting period was over. She never
got the new insurance for the children, though, as Mallory was
diagnosed before the waiting period was over. Now, they will never
be able to get better insurance, since both children have a
pre-existing condition that will not be covered. So they are left
with lots of hospital, physician, and pharmacy bills. In February
2005, Mallory spent 18 days at Kosair, unable to eat or drink,
forcing her body into a state of anorexia and her mind into a state
of depression. A feeding tube had to be placed into her intestines
to "teach" them to work again, and they finally let them go home
with the feeding tube. There have been numerous other hospital stays
with low platelet or ANC counts, fevers, viruses, and drug side
effects. |
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